Dementia Australia (Qld) - Rosemary House Dementia Support Centre and Cedar House, 46 Bonogin Road, Mudgeeraba.
Big pharma calls it quits on Alzheimer's and Parkinson’s research
Criticisms are flowing from national and international peak bodies as they come to terms with the announcement by one of the world’s leading drug makers, Pfizer, to end their research into discovering new medications for Alzheimer's and Parkinson’s. January 2018
Dementia Australia voice concerns 07 February 2018
-------------------------------------
Emergency contacts when the helpline is closed
If we are closed, in case of emergency please contact 000 or Lifeline 13 11 14. For help with dementia management, contact the
Dementia Behaviour Management Advisory Service on 1800 699 799. These services are available 24/7.
http://www.dementia.org.au/helpline/webchat
Would you like to chat online?
Webchat operates between 9.00am and 5.00pm EST, Monday to Friday excluding public holidays.
do scroll down the page for videos of people who have contacted the Helpline.
Would you like to chat online?
Webchat operates between 9.00am and 5.00pm EST, Monday to Friday excluding public holidays.
Out of hours assistance:
National Dementia Helpline: 1800 100 500
and if you are needing Immediate over the phone H E L P...
Dementia Support Australia (DBMAS) 1800 699 799 available 24/7 365 days a year.
When is the helpline open?
The Helpline operates nationally from 9.00am to 5.00pm Monday to Friday excluding public holidays. A message service is available so if you call outside operating hours, we’ll call you back the next working day.
What is the National Dementia Behaviour Management Advisory Helpline?
The National Dementia Helpline is a free confidential phone and email information and support service which provides:
Who is the helpline for?
The Helpline is for anyone interested in dementia, concerned about their memory, anybody who has been diagnosed with dementia or who works with people with dementia, or anybody who simply wants to know more.
Is the helpline confidential?
Yes, all of our services are private and confidential. Your personal information will not be shared without your consent (unless required by law). See our terms of use and privacy policy for more information.
Dementia Support Australia (DSA) is a partnership led by HammondCare that brings together dementia expertise from across the aged care industry. It provides the Dementia Behaviour Management Advisory Service (DBMAS) and Severe Behaviour Response Teams (SBRT) nationwide. Supported by the Australian Government under the Dementia and Aged Care Services Fund, Dementia Support Australia offers a free national service operating 24/7 365 days a year.
Dementia Behaviour Management Advisory Service (DBMAS)
The Dementia Behaviour Management Advisory Service (DBMAS) is a national free service funded by the Australian Government.
It is operated and administered by Dementia Support Australia (DSA).
For information about DBMAS, visit https://dementia.com.au
==================================================
"An exciting change for Alzheimer’s Australia (Qld) since our state and territory bodies became one, single organisation known as Dementia Australia – a unified, national peak body for people living with the impacts of all forms of dementia. With this unification comes opportunity to improve our existing services and support, particularly for people living in remote and regional areas. It is the new voice of Alzheimer’s Australia." 18 October 2017.
and on the Gold Coast, Queensland:
Dementia Australia (Qld)
Rosemary House Dementia Support CentreRosemary House
90 Allied Drive
Arundel QLD 4214
PO Box 184
Arundel BC QLD 4214
Phone: 07 5594 0270
Fax: 07 5571 5987
In this centre we provide:
For any assistance, information or support outside of these hours, please phone the National Dementia Helpline on 1800 100 500.
and don't forget their Cedar House Dementia Support Centre, 46 Bonogin Road, Mudgeeraba Qld 4213.
Dementia Australia (Qld)
Cedar House Dementia Support Centre46 Bonogin Rd
Mudgeeraba QLD 4213
Phone: 07 5594 0270
Open: Monday to Friday 8:00am – 4:00pm
For any assistance, information or support outside of these hours, please phone the National Dementia Helpline on 1800 100 500.
Phone: 07 3895 8200
Fax: 07 5571 5987
Email: [email protected] or complete an online enquiry form.
Open: Monday to Friday: 8am - 4pm
For any assistance, information or support outside of these hours, please phone the National Dementia Helpline on 1800 100 500.
===============================Medicines and dementia: what you need to know
Medicines do not have to be part of your care plan for dementia, and if they are, they do not have to play a large role in your life.
NPS MedicineWise and Alzheimer’s Australia have prepared downloadable materials to help you ask questions and talk with people close to you and the health professionals involved in your care about how you would like to be supported.
The main resource is an information booklet, designed to help you:
Dementia Q&A:
01 Drug treatments for Alzheimer's disease - Cholinesterase inhibitors
02 PBS subsidies for cholinesterase inhibitors what are the conditions?
03 Drug treatments for Alzheimer’s disease - Memantine
04 Drugs used to relieve behavioural and psychological symptoms of dementia
05 Risperidone for treatment of behavioural symptoms in dementia
06 Mental exercise and dementia
07 What you eat and drink and your brain
08 Physical exercise and dementia
09 Safer walking for people with dementia approaches and technologies
10 Tests used in diagnosing dementia
11 Diagnostic criteria for dementia
12 Genetics of dementia
13 Mild Cognitive Impairment (MCI)
14 Vascular Cognitive Impairment
15 Depression and dementia
16 Pain and dementia
17 Brain donation
18 Rights to health information
19 Aluminium and Alzheimer's disease
20 Anaesthesia for older people and people with dementia
21 Delirium and dementia
22 Preventing financial abuse of people with dementia
23 Souvenaid
24 Anticholinergic drugs
25 Benzodiazepines
Note: to reserve a place at Rosemary House Dementia Support Centre, 90 Allied Drive, Arundel or Cedar House Dementia Support Centre, 46 Bonogin Road, Mudgeeraba, you will need to contact MyAgedCare on 1800 200 422 or visit www.myagedcare.gov.au to set it all up.
Alzheimer's Education, Library, Services cover all of the Gold Coast. Help sheets.
Dementia Respite Guide: This free resource is available online www.dementiaresearch.org.au/respitecareguide
Limited copies from Carers Advisory Service on 1800 242 636.
https://www.dementia.org.au/about-dementia/resources/videos/latest
When researching respite, people should ask providers and themselves a number of questions:
Can continuity be ensured, in the sense of providing the same staff member each time?
How does the service provider respond to the changes that might occur as the disease progresses?
Government funding is available for many different types of respite service to support people with dementia and their carers. However, access to respite has recently been reframed, and some aspects now depend on the age of the person with dementia.
For people living with dementia over the age of 65, respite can be accessed through My Aged Care by calling 1800 200 422 or visiting myagedcare.gov.au.
Meanwhile, the National Disability Insurance Scheme (NDIS) provides funding for services for people living with dementia under the age of 65. However, this doesn’t focus on services for the carer, but rather the person with the diagnosis. For more information, contact 1800 800 110 or visit ndis.gov.au.
Assistance Dog for Dementia:
Launched in early 2016 to help those with dementia experience a more fulfilling life and engage with their community, accompanied by their doggy companion -
http://www.assistancedogs.org.au
-------------------------------------------------------------------
An Absolute Must Read. From one who Has Dementia... A Must Read for YOUR family, carer, friends.
Time To Tell The Truth About Dementia….From Someone Living With Dementia
By Norrms McNamara. Jan 22, 2018
Things YOU always wanted to know, or SHOULD know about dementia, but THEY were too AFRAID to TELL YOU, and I am sure many others were horrified around the world to learn that THIS information is not being given out, this is “MY ANSWER TO THEM”.
These are just 15 points of what you MAY come to expect after a diagnosis of dementia, WHY don’t they tell you this? and WHY has it taken so long to be told this? especially by a person who is LIVING with this disease ?? I have NO IDEA !!
------------------------------------------------------------------------
Counselling:
Alzheimer’s Australia provides a free counselling service for people with dementia, their families and friends.
https://www.dementia.org.au/services/counselling
https://www.dementia.org.au/support/in-your-region/qld
Counsellors are skilled professionals who are trained to provide support, advice and practical assistance.
People who can benefit from dementia counselling include:
Often a family conference with a dementia counselor is a valuable first step in making sure that everyone concerned is at the same level of understanding and can develop complimentary support roles. Family counselling can also support family groups to work towards improving relationships when finding ways to cope with living with dementia.
For further information or to arrange counselling call the National Dementia Helpline on 1800 100 500.
Email: [email protected]
Privacy
Only you and the Dementia Advisor can see your online conversation, however we will need to record some of your details for statistical and reporting reasons. For more information about how we use and store your personal information, please read our privacy policy.
Dementia counselling can assist individuals and families by:
Bookings are essential. For more information and to book, please call 1800 588 699.
==============================
Upcoming Seminars in Queensland:
https://www.alzheimersonline.org/page/our-services/Education-Training/Workshops-and-Seminars/
MUSIC THERAPY Music Therapy provides great social engagement and an opportunity to reminisce and sing along to old favourites.
When: 3rd Monday of each month, 11am – 12pm
Where: Taking expressions of interest for the Gold Coast now.
Bookings are essential. For more information, please call our National Dementia Support Program free booking line on 1800 588 699.
Coming up on the Gold Coast:
Do ring and check first though, as some have changed services due to virus.
Living with Memory Loss
Living with Memory Loss courses are run throughout the year and dates can be tailored to suit the needs of participants. Phone 1800 100 500
The Living with Memory Loss program is designed specifically for people in the early stages of dementia who want to share their experiences or feelings with others in the same situation. Participants are able to bring a carer, family member or friend with them if they like. The program provides accurate information about brain function and focuses on ways to help maintain a person's abilities as well as offering practical strategies for living with dementia.
There are also programs for people with younger onset dementia (diagnosis of dementia before the age of 65 years).
Cost: Free (funded by the Australian Government)
Suitable for: Participants must have a diagnosis of dementia or be accompanying a person with a diagnosis.
Content covered includes:
========================================================
Australian Government Programs to Support People Living with Dementia, and Their Support Networks
Page last updated: 15 February 2019
National Dementia Support Program
Younger Onset Dementia Key Worker Program
Dementia Education and Training for Carers
Dementia Behaviour Management Advisory Services
Severe Behaviour Response Teams
Dementia Training Program
National Dementia Support Program (NDSP)
Under the NDSP, the Australian Government funds education programs, services and resources that aim to improve awareness and understanding about dementia and increase the skills and confidence of people living with dementia, their carers, families, health professionals, volunteers and community contacts. Services provided under the NDSP include:
* Free local call, calls from mobile and pay phones may incur extra charges. For people who do not speak English, the Translating and Interpreting Service (131 450) will provide translation and interpretation services for calls to the National Dementia Helpline.
The NDSP is funded under the Dementia and Aged Care Services fund.
==========================================================
ALZConnected® (www.alzconnected.org), powered by the Alzheimer's Association®, is a free online community for everyone affected by Alzheimer's or another dementia, including:
Dementia support website
Alzheimer’s Australia Vic has launched an online information and counselling service to provide round-the-clock support to people with dementia and their carers.
Visitors to the Online Dementia Support website can arrange:
The resource was developed by the client services team in conjunction with carers and aims to enable easier access for people seeking information and support, acknowledging the time challenges people living with dementia and carers face juggling work, home, family, appointments and other commitments, according to Alzheimer’s Australia Vic.
Key features of the online resource include:
In the videos, experts and family carers help others to learn more about dementia, offer tips on more effective communication, discuss changes in behaviour and offer useful information on residential care.
Alzheimer's Australia Help Sheets
provide advice, common sense approaches and practical strategies on the issues most commonly raised about dementia and they cover the following topics:
Click here to access the above Help Sheets as PDF files which you can read, download, and print.
Now...
For that all important practical help on the Gold Coast, Qld ---
Note: to reserve a place at Gold Coast Rosemary House or Cedar House, Dementia Support Centre, 46 Bonogin Road, Mudgeeraba, you will need to contact MyAgedCare on 1800 200 422 or visit www.myagedcare.gov.au to set it all up.
Day Care Programs on the Gold Coast, Qld – based at Rosemary House, 90 Allied Drive, Arundel. Phone (07) 5594 0270 .
Door-to-door transport is available in the organisation’s own vehicles, or carers can transport their own loved ones. Pick-ups usually commence from 8:30 AM. Most people are home by 4:00 PM, depending on distance from the Centre.
"Out and About" program for newly diagnosed and cognitively aware clients.
and at Dementia Support Centre, Cedar House, Dementia Support Centre, 46 Bonogin Road, Mudgeeraba Qld 4213.
Phone 07 5594 0270 Email: [email protected] (link sends e-mail)
Open Monday to Friday 7am to 3pm.
this Dementia Support Centre at Mudgeeraba provides:
Flexible Respite Options:
Ozcare Ozanam Villa Burleigh, 20 Matilda Street, BURLEIGH HEADS QLD 4220
P: (07) 5576 4055 E: [email protected] Web: https://www.agedcareguide.com.au/ozcare-day-respite-centre-burleigh-heads
Residential Centre-based Respite - 24 Hour Care.
Centre based care features Types of care
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
LIVING ON THE GOLD COAST?
Talking informally with other Carers Does Help!
Angels Carer Support Group. Held the last Tuesday of each month at St. Paul's Anglican Church Hall, 69 Palm Beach Ave, PALM BEACH - (next meeting on the 23 February as the 26th January is Australia Day holiday).
Come just after 1.00pm for that cuppa and a chat. Often we have Speakers on subjects of interest to us as Carers - they start about 1.00pm and go to about 3.00pm. Other times we just sit, relax and enjoy each other's company and support each other as we face the daily caregiving tasks. Sit and chat, and take a brief break - for YOU :-) We hold our meetings on the last Tuesday of each month. Father Phillip is a Great Supporter of the Angels.
YOU are most welcome to join us :-) Do take CARE of YOU too...
and to find out what else is going on in the Palm Beach area: http://palmbeachgoldcoast.net.au/events/
Living on the Gold Coast? Our Angels Carer Support Group are being helped by these Tradespeople... Those who are Caring for others give all of their time 24/7 for the well-being of their loved one. It is a relentless, loving and all exhausting time in their lives, and those for whom they care... Rob Cinelli of LJ Hooker, Shop 2/10 Fifth Avenue, Palm Beach Qld 4221 has been helping us with practical help and suggestions... It is making our lives that much easier. When you ring, do thank Rob Cinelli and his staff for their ongoing support of the Angels Carer Support Group, and let him know that he is Valued...
--------------------------------
and on the Gold Coast, Queensland:
Rosemary House Dementia Support Centre
Rosemary House
90 Allied Drive
Arundel Qld 4214
Phone (07) 5594 0270
Fax (07) 5571 5987
Email: [email protected] or complete an online enquiry form.
Postal Address: PO Box 184 Arundel BC QLD 4214
Operating hours - Mon - Fri 8am to 4pm
Twilighting - 4pm - 8pm and overnight stays Mon Tue Wed and Thurs with caring staff to look after your loved ones.
In-Home Day Respite - Our trained in-home workers are available to provide respite in a client’s home to enable their carer to take some time off, or to go out to attend social events or to do tasks outside the home. Alternatively, they may take the client to a medical appointment or an organized activity.
Up to 9 hours, three times a week.
Short term Respite - for up to 3 days and 2 nights. Monday to Thursdays.
Personal Care - Our trained in-home workers visit the home to provide personal care such as assistance with showering etc. or meal preparation for those clients needing this help. Operating hours Monday to Friday 8.00am to 4.00pm.
Domestic Assistance – Light household duties including cleaning of main living areas, bathroom, toilet and laundry, unaccompanied shopping. Monday to Friday 7.00am to 5.00pm.
In Home Social Support – We are able to assist with shopping, transport to medical appointments and planned social activities.
Four hours a week 7.00am to 4.00pm. Outings are 2 hours a week.
Men's Shed - at Rosemary House. 90 Allied Drive, Arundel on the Gold Coast. Contact Sarah O'Brien on (07) 5594 0270.
Delivery of Meals - Operating hours Monday 7.00am to 5.00pm.
Podiatry - Is available on Thursdays 8.00am to 4.00pm.
Advocacy, support and information – Is available from our Services Provisions Officer by phoning (07) 5594 0270.
Counselling services - Operating hours Monday to Friday 8.00am to 4.00pm.
NB: Clients may receive a range of service types, depending on their needs. Service Provision Officer's are available to discuss service types best suited to your loved ones individual needs.
Phone (07) 5594 0270.
==================
Advanced Dementia Day Respite Program
Churches of Christ Care - Community Care Gold Coast
The Advanced Dementia Day Respite Program is run from the secure unit at Tricare Labrador, in partnership with Churches of Christ Care.
This program is suitable for clients who are no longer able to attend other day respite centres due to their high care needs.
The cost is $25. per day for the care provided.
Commonwealth Carers' Respite Centre has generously funded the cost for the lunch provided by Tricare.
Transport is available if required with a fee of $7. each eay.
Please ring 07 5539 7600 if you would like to discuss this program. Our friendly staff will be happy to help you.
My Aged Care Service type - Centre based respite.
Churches of Christ Care.
7 January 2021
Big pharma calls it quits on Alzheimer's and Parkinson’s research
Criticisms are flowing from national and international peak bodies as they come to terms with the announcement by one of the world’s leading drug makers, Pfizer, to end their research into discovering new medications for Alzheimer's and Parkinson’s. January 2018
Dementia Australia voice concerns 07 February 2018
-------------------------------------
Emergency contacts when the helpline is closed
If we are closed, in case of emergency please contact 000 or Lifeline 13 11 14. For help with dementia management, contact the
Dementia Behaviour Management Advisory Service on 1800 699 799. These services are available 24/7.
http://www.dementia.org.au/helpline/webchat
Would you like to chat online?
Webchat operates between 9.00am and 5.00pm EST, Monday to Friday excluding public holidays.
do scroll down the page for videos of people who have contacted the Helpline.
Would you like to chat online?
Webchat operates between 9.00am and 5.00pm EST, Monday to Friday excluding public holidays.
Out of hours assistance:
National Dementia Helpline: 1800 100 500
and if you are needing Immediate over the phone H E L P...
Dementia Support Australia (DBMAS) 1800 699 799 available 24/7 365 days a year.
When is the helpline open?
The Helpline operates nationally from 9.00am to 5.00pm Monday to Friday excluding public holidays. A message service is available so if you call outside operating hours, we’ll call you back the next working day.
What is the National Dementia Behaviour Management Advisory Helpline?
The National Dementia Helpline is a free confidential phone and email information and support service which provides:
- information about dementia and memory loss
- information on how you may be able to reduce the risk of getting dementia
- information about government support services (including My Aged Care, the Carer Gateway, Centrelink)
- information about services in your area
- emotional support to help you manage the impact of dementia
Who is the helpline for?
The Helpline is for anyone interested in dementia, concerned about their memory, anybody who has been diagnosed with dementia or who works with people with dementia, or anybody who simply wants to know more.
Is the helpline confidential?
Yes, all of our services are private and confidential. Your personal information will not be shared without your consent (unless required by law). See our terms of use and privacy policy for more information.
Dementia Support Australia (DSA) is a partnership led by HammondCare that brings together dementia expertise from across the aged care industry. It provides the Dementia Behaviour Management Advisory Service (DBMAS) and Severe Behaviour Response Teams (SBRT) nationwide. Supported by the Australian Government under the Dementia and Aged Care Services Fund, Dementia Support Australia offers a free national service operating 24/7 365 days a year.
Dementia Behaviour Management Advisory Service (DBMAS)
The Dementia Behaviour Management Advisory Service (DBMAS) is a national free service funded by the Australian Government.
It is operated and administered by Dementia Support Australia (DSA).
For information about DBMAS, visit https://dementia.com.au
==================================================
"An exciting change for Alzheimer’s Australia (Qld) since our state and territory bodies became one, single organisation known as Dementia Australia – a unified, national peak body for people living with the impacts of all forms of dementia. With this unification comes opportunity to improve our existing services and support, particularly for people living in remote and regional areas. It is the new voice of Alzheimer’s Australia." 18 October 2017.
and on the Gold Coast, Queensland:
Dementia Australia (Qld)
Rosemary House Dementia Support CentreRosemary House
90 Allied Drive
Arundel QLD 4214
PO Box 184
Arundel BC QLD 4214
Phone: 07 5594 0270
Fax: 07 5571 5987
In this centre we provide:
- Day care (Monday – Friday)
- Extended care
- Twilight care
- In home respite
- Overnight care available Monday – Thursday nights at Rosemary House
- Social support for people who live alone
- Assistance with personal care
- Domestic assistance
- Carer support group meetings
- Carers’ holiday program
For any assistance, information or support outside of these hours, please phone the National Dementia Helpline on 1800 100 500.
and don't forget their Cedar House Dementia Support Centre, 46 Bonogin Road, Mudgeeraba Qld 4213.
Dementia Australia (Qld)
Cedar House Dementia Support Centre46 Bonogin Rd
Mudgeeraba QLD 4213
Phone: 07 5594 0270
Open: Monday to Friday 8:00am – 4:00pm
For any assistance, information or support outside of these hours, please phone the National Dementia Helpline on 1800 100 500.
Phone: 07 3895 8200
Fax: 07 5571 5987
Email: [email protected] or complete an online enquiry form.
Open: Monday to Friday: 8am - 4pm
For any assistance, information or support outside of these hours, please phone the National Dementia Helpline on 1800 100 500.
- Download or read Flexible respite for people with dementia and their carers - Information for consumers
===============================Medicines and dementia: what you need to know
Medicines do not have to be part of your care plan for dementia, and if they are, they do not have to play a large role in your life.
NPS MedicineWise and Alzheimer’s Australia have prepared downloadable materials to help you ask questions and talk with people close to you and the health professionals involved in your care about how you would like to be supported.
The main resource is an information booklet, designed to help you:
- plan a conversation about dementia with the people you choose, for example, your family and friends and health professionals involved in your care (eg, GPs, pharmacists, specialists, nurses)
- find out about advanced care planning
- find out what support is available to manage your symptoms
- find information on what treatment options may be best for you
- record details about symptoms, medicines, values and wishes when it comes to your care
- find out about support services available to help you and those closest to you
Dementia Q&A:
01 Drug treatments for Alzheimer's disease - Cholinesterase inhibitors
02 PBS subsidies for cholinesterase inhibitors what are the conditions?
03 Drug treatments for Alzheimer’s disease - Memantine
04 Drugs used to relieve behavioural and psychological symptoms of dementia
05 Risperidone for treatment of behavioural symptoms in dementia
06 Mental exercise and dementia
07 What you eat and drink and your brain
08 Physical exercise and dementia
09 Safer walking for people with dementia approaches and technologies
10 Tests used in diagnosing dementia
11 Diagnostic criteria for dementia
12 Genetics of dementia
13 Mild Cognitive Impairment (MCI)
14 Vascular Cognitive Impairment
15 Depression and dementia
16 Pain and dementia
17 Brain donation
18 Rights to health information
19 Aluminium and Alzheimer's disease
20 Anaesthesia for older people and people with dementia
21 Delirium and dementia
22 Preventing financial abuse of people with dementia
23 Souvenaid
24 Anticholinergic drugs
25 Benzodiazepines
- Younger onset Dementia? You have not been forgotten...
An information sheet about younger onset dementia is in the appendix of this toolkit. This information sheet can be given to the NDIA representative during your planning meeting. This will help them understand the impact of younger onset dementia. You can add personal information to this sheet - outline the symptoms you experience, how younger onset dementia has changed your life and how this impacts on your day-to-day life and your carer and/or family.
YOUR NDIS GOALS:
It is important to tell the NDIA about your goal/s. These will be listed in your NDIS plan to let the NDIA know what is important to you and what support you need. It is useful to prioritise your two main goals prior to your NDIS meeting.
When thinking about your goals, ask yourself questions such as:
• What are the things that are most important to me?
• What are the things I would most like to change?
• What would I like to do with less help from others?
• Are there new things I would like to try? You might have goals in different areas of your life including:
• Daily life
• Living arrangements
• Relationships
• Health and wellbeing
• Learning
• Work
• Social and community activities
• Choice and control - Toolkit launched to support people with younger onset dementia when accessing the NDIS:
Dementia Australia has launched a new resource to support people living with younger onset dementia and their carers when navigating the National Disability Insurance Scheme (NDIS).
Dementia Australia thanks the NSW Department of Family and Community Services for funding this resource. The NDIS Toolkit for People Living with Younger Onset Dementia and their Carers can be accessed by clicking here or by calling the National Dementia Helpline on 1800 100 500.
==========================================================
Note: to reserve a place at Rosemary House Dementia Support Centre, 90 Allied Drive, Arundel or Cedar House Dementia Support Centre, 46 Bonogin Road, Mudgeeraba, you will need to contact MyAgedCare on 1800 200 422 or visit www.myagedcare.gov.au to set it all up.
Alzheimer's Education, Library, Services cover all of the Gold Coast. Help sheets.
Dementia Respite Guide: This free resource is available online www.dementiaresearch.org.au/respitecareguide
Limited copies from Carers Advisory Service on 1800 242 636.
https://www.dementia.org.au/about-dementia/resources/videos/latest
When researching respite, people should ask providers and themselves a number of questions:
- What sort of respite is on offer?
- Is this type of service provided at the time you need it?
- Is the provider’s location and atmosphere safe, friendly and supportive?
- What sorts of activities are involved? Do these respite activities, staff and group members match the personal interests of the person receiving the respite service?
- How flexible is the respite service? How are individual interests and wellbeing assessed, supported, discussed and reviewed?
Can continuity be ensured, in the sense of providing the same staff member each time?
How does the service provider respond to the changes that might occur as the disease progresses?
Government funding is available for many different types of respite service to support people with dementia and their carers. However, access to respite has recently been reframed, and some aspects now depend on the age of the person with dementia.
For people living with dementia over the age of 65, respite can be accessed through My Aged Care by calling 1800 200 422 or visiting myagedcare.gov.au.
Meanwhile, the National Disability Insurance Scheme (NDIS) provides funding for services for people living with dementia under the age of 65. However, this doesn’t focus on services for the carer, but rather the person with the diagnosis. For more information, contact 1800 800 110 or visit ndis.gov.au.
Assistance Dog for Dementia:
Launched in early 2016 to help those with dementia experience a more fulfilling life and engage with their community, accompanied by their doggy companion -
http://www.assistancedogs.org.au
-------------------------------------------------------------------
An Absolute Must Read. From one who Has Dementia... A Must Read for YOUR family, carer, friends.
Time To Tell The Truth About Dementia….From Someone Living With Dementia
By Norrms McNamara. Jan 22, 2018
Things YOU always wanted to know, or SHOULD know about dementia, but THEY were too AFRAID to TELL YOU, and I am sure many others were horrified around the world to learn that THIS information is not being given out, this is “MY ANSWER TO THEM”.
These are just 15 points of what you MAY come to expect after a diagnosis of dementia, WHY don’t they tell you this? and WHY has it taken so long to be told this? especially by a person who is LIVING with this disease ?? I have NO IDEA !!
------------------------------------------------------------------------
Counselling:
Alzheimer’s Australia provides a free counselling service for people with dementia, their families and friends.
https://www.dementia.org.au/services/counselling
https://www.dementia.org.au/support/in-your-region/qld
Counsellors are skilled professionals who are trained to provide support, advice and practical assistance.
People who can benefit from dementia counselling include:
- People in the early stages of dementia
- Carers of people with dementia
- Family such as spouse, partners and children
- Friends and other significant people
Often a family conference with a dementia counselor is a valuable first step in making sure that everyone concerned is at the same level of understanding and can develop complimentary support roles. Family counselling can also support family groups to work towards improving relationships when finding ways to cope with living with dementia.
For further information or to arrange counselling call the National Dementia Helpline on 1800 100 500.
Email: [email protected]
Privacy
Only you and the Dementia Advisor can see your online conversation, however we will need to record some of your details for statistical and reporting reasons. For more information about how we use and store your personal information, please read our privacy policy.
Dementia counselling can assist individuals and families by:
- Gaining an understanding of the impact of dementia
- Identifying strategies for coping and living with dementia
- Planning how to care in the future when the dementia changes
- Dealing with feelings of stress and a mixture of emotions
- Helping families reach agreement on dementia care issues
- Making referrals for relevant assistance
Bookings are essential. For more information and to book, please call 1800 588 699.
==============================
Upcoming Seminars in Queensland:
https://www.alzheimersonline.org/page/our-services/Education-Training/Workshops-and-Seminars/
MUSIC THERAPY Music Therapy provides great social engagement and an opportunity to reminisce and sing along to old favourites.
When: 3rd Monday of each month, 11am – 12pm
Where: Taking expressions of interest for the Gold Coast now.
Bookings are essential. For more information, please call our National Dementia Support Program free booking line on 1800 588 699.
Coming up on the Gold Coast:
Do ring and check first though, as some have changed services due to virus.
Living with Memory Loss
Living with Memory Loss courses are run throughout the year and dates can be tailored to suit the needs of participants. Phone 1800 100 500
The Living with Memory Loss program is designed specifically for people in the early stages of dementia who want to share their experiences or feelings with others in the same situation. Participants are able to bring a carer, family member or friend with them if they like. The program provides accurate information about brain function and focuses on ways to help maintain a person's abilities as well as offering practical strategies for living with dementia.
There are also programs for people with younger onset dementia (diagnosis of dementia before the age of 65 years).
Cost: Free (funded by the Australian Government)
Suitable for: Participants must have a diagnosis of dementia or be accompanying a person with a diagnosis.
Content covered includes:
- Symptoms and diagnosis
- Adapting to change
- Research and new drug treatments
- Practical strategies for everyday living
- Relationships with family and friends
- Looking after yourself
- Planning for the future
- Community services
- Where to from here?
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Australian Government Programs to Support People Living with Dementia, and Their Support Networks
Page last updated: 15 February 2019
National Dementia Support Program
Younger Onset Dementia Key Worker Program
Dementia Education and Training for Carers
Dementia Behaviour Management Advisory Services
Severe Behaviour Response Teams
Dementia Training Program
National Dementia Support Program (NDSP)
Under the NDSP, the Australian Government funds education programs, services and resources that aim to improve awareness and understanding about dementia and increase the skills and confidence of people living with dementia, their carers, families, health professionals, volunteers and community contacts. Services provided under the NDSP include:
- National website https://www.dementia.org.au
- National Dementia Helpline and Referral Service 1800 100 500*
- One-to-one and small group counselling, access to support groups and information, and recommendations and referrals
- Early intervention programs, for example the Living With Dementia program
- Non-accredited training for professionals, carer education and training, and community education seminars
- Public awareness raising, recognition and understanding of dementia.
* Free local call, calls from mobile and pay phones may incur extra charges. For people who do not speak English, the Translating and Interpreting Service (131 450) will provide translation and interpretation services for calls to the National Dementia Helpline.
The NDSP is funded under the Dementia and Aged Care Services fund.
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ALZConnected® (www.alzconnected.org), powered by the Alzheimer's Association®, is a free online community for everyone affected by Alzheimer's or another dementia, including:
- People with the disease.
- Caregivers.
- Family members.
- Friends.
- Individuals who have lost someone to Alzheimer's.
Dementia support website
Alzheimer’s Australia Vic has launched an online information and counselling service to provide round-the-clock support to people with dementia and their carers.
Visitors to the Online Dementia Support website can arrange:
- free online counselling,
- learn about dementia,
- connect with others in the same situation and
- discover where and how to get help.
The resource was developed by the client services team in conjunction with carers and aims to enable easier access for people seeking information and support, acknowledging the time challenges people living with dementia and carers face juggling work, home, family, appointments and other commitments, according to Alzheimer’s Australia Vic.
Key features of the online resource include:
- 24-hour access to information and resources;
- counselling via email or video conference;
- a forum for participating in an online peer support community;
- 16 videos with experts and carers sharing their experiences to help others.
In the videos, experts and family carers help others to learn more about dementia, offer tips on more effective communication, discuss changes in behaviour and offer useful information on residential care.
Alzheimer's Australia Help Sheets
provide advice, common sense approaches and practical strategies on the issues most commonly raised about dementia and they cover the following topics:
- About dementia – including diagnosis, early planning, next steps, drug treatments, memory changes, types of dementia
- Changed behaviours and dementia – including depression, wandering, sundowning, aggressive behaviours, hallucinations
- Looking after families and carers – including taking a break, taking care of yourself, feelings, men and caring
- Caring for someone with dementia – including communication, driving, travelling, respite, pain, eating, nutrition, dressing, sexual issues
- Residential care and dementia – including deciding on residential care, good care in a residential facility, coping with placement
- Information for people with dementia – including early planning, driving, living alone, feelings and adjusting to change
- Aboriginal and Torres Strait Islander people – diagnosing dementia, information for family and friends, memory changes
- Lewy body disease – including cognitive changes, neuropsychiatric changes, motor changes, autonomic changes
- Younger onset dementia – including planning ahead, decision making capacity, employment, health, wellbeing and lifestyle
- Tips to assist social engagement – friends, visiting, holidays, art at home, music at home
- Dementia Q&A – drug treatments, mental exercise, what you eat and drink, physical exercise, genetics, pain
- Other information – Mild Cognitive Impairment (MCI)
Click here to access the above Help Sheets as PDF files which you can read, download, and print.
Now...
For that all important practical help on the Gold Coast, Qld ---
Note: to reserve a place at Gold Coast Rosemary House or Cedar House, Dementia Support Centre, 46 Bonogin Road, Mudgeeraba, you will need to contact MyAgedCare on 1800 200 422 or visit www.myagedcare.gov.au to set it all up.
Day Care Programs on the Gold Coast, Qld – based at Rosemary House, 90 Allied Drive, Arundel. Phone (07) 5594 0270 .
Door-to-door transport is available in the organisation’s own vehicles, or carers can transport their own loved ones. Pick-ups usually commence from 8:30 AM. Most people are home by 4:00 PM, depending on distance from the Centre.
"Out and About" program for newly diagnosed and cognitively aware clients.
and at Dementia Support Centre, Cedar House, Dementia Support Centre, 46 Bonogin Road, Mudgeeraba Qld 4213.
Phone 07 5594 0270 Email: [email protected] (link sends e-mail)
Open Monday to Friday 7am to 3pm.
this Dementia Support Centre at Mudgeeraba provides:
Flexible Respite Options:
- Centre Based Respite
- Respite for younger people living with dementia
- In home respite
- Out and About community respite
Ozcare Ozanam Villa Burleigh, 20 Matilda Street, BURLEIGH HEADS QLD 4220
P: (07) 5576 4055 E: [email protected] Web: https://www.agedcareguide.com.au/ozcare-day-respite-centre-burleigh-heads
Residential Centre-based Respite - 24 Hour Care.
Centre based care features Types of care
- Dementia care
- Respite care
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LIVING ON THE GOLD COAST?
Talking informally with other Carers Does Help!
Angels Carer Support Group. Held the last Tuesday of each month at St. Paul's Anglican Church Hall, 69 Palm Beach Ave, PALM BEACH - (next meeting on the 23 February as the 26th January is Australia Day holiday).
Come just after 1.00pm for that cuppa and a chat. Often we have Speakers on subjects of interest to us as Carers - they start about 1.00pm and go to about 3.00pm. Other times we just sit, relax and enjoy each other's company and support each other as we face the daily caregiving tasks. Sit and chat, and take a brief break - for YOU :-) We hold our meetings on the last Tuesday of each month. Father Phillip is a Great Supporter of the Angels.
YOU are most welcome to join us :-) Do take CARE of YOU too...
and to find out what else is going on in the Palm Beach area: http://palmbeachgoldcoast.net.au/events/
Living on the Gold Coast? Our Angels Carer Support Group are being helped by these Tradespeople... Those who are Caring for others give all of their time 24/7 for the well-being of their loved one. It is a relentless, loving and all exhausting time in their lives, and those for whom they care... Rob Cinelli of LJ Hooker, Shop 2/10 Fifth Avenue, Palm Beach Qld 4221 has been helping us with practical help and suggestions... It is making our lives that much easier. When you ring, do thank Rob Cinelli and his staff for their ongoing support of the Angels Carer Support Group, and let him know that he is Valued...
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and on the Gold Coast, Queensland:
Rosemary House Dementia Support Centre
Rosemary House
90 Allied Drive
Arundel Qld 4214
Phone (07) 5594 0270
Fax (07) 5571 5987
Email: [email protected] or complete an online enquiry form.
Postal Address: PO Box 184 Arundel BC QLD 4214
Operating hours - Mon - Fri 8am to 4pm
Twilighting - 4pm - 8pm and overnight stays Mon Tue Wed and Thurs with caring staff to look after your loved ones.
In-Home Day Respite - Our trained in-home workers are available to provide respite in a client’s home to enable their carer to take some time off, or to go out to attend social events or to do tasks outside the home. Alternatively, they may take the client to a medical appointment or an organized activity.
Up to 9 hours, three times a week.
Short term Respite - for up to 3 days and 2 nights. Monday to Thursdays.
Personal Care - Our trained in-home workers visit the home to provide personal care such as assistance with showering etc. or meal preparation for those clients needing this help. Operating hours Monday to Friday 8.00am to 4.00pm.
Domestic Assistance – Light household duties including cleaning of main living areas, bathroom, toilet and laundry, unaccompanied shopping. Monday to Friday 7.00am to 5.00pm.
In Home Social Support – We are able to assist with shopping, transport to medical appointments and planned social activities.
Four hours a week 7.00am to 4.00pm. Outings are 2 hours a week.
Men's Shed - at Rosemary House. 90 Allied Drive, Arundel on the Gold Coast. Contact Sarah O'Brien on (07) 5594 0270.
Delivery of Meals - Operating hours Monday 7.00am to 5.00pm.
Podiatry - Is available on Thursdays 8.00am to 4.00pm.
Advocacy, support and information – Is available from our Services Provisions Officer by phoning (07) 5594 0270.
Counselling services - Operating hours Monday to Friday 8.00am to 4.00pm.
NB: Clients may receive a range of service types, depending on their needs. Service Provision Officer's are available to discuss service types best suited to your loved ones individual needs.
Phone (07) 5594 0270.
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Advanced Dementia Day Respite Program
Churches of Christ Care - Community Care Gold Coast
The Advanced Dementia Day Respite Program is run from the secure unit at Tricare Labrador, in partnership with Churches of Christ Care.
This program is suitable for clients who are no longer able to attend other day respite centres due to their high care needs.
The cost is $25. per day for the care provided.
Commonwealth Carers' Respite Centre has generously funded the cost for the lunch provided by Tricare.
Transport is available if required with a fee of $7. each eay.
Please ring 07 5539 7600 if you would like to discuss this program. Our friendly staff will be happy to help you.
My Aged Care Service type - Centre based respite.
Churches of Christ Care.
7 January 2021